what is the best known treatment for a desmoid sarcoma?My daughter has a desmoid sarcoma in her calf -ankle it has been excised radiated and she has taken anti estrogen treatments. Now she is undergoing chemo therapy as this has returned several times. Drs believe it could sattelite if her leg was amputated. Thanks for your input
Answer by Panda
Desmoid tumors are not strictly sarcoma's because they do not generally metastastize. However, because they tend to reoccur and can be stubborn they probably should be treated by a sarcoma specialist.
For the latest treatment guidelines you can check the National Comprehensive Cancer Network Clinical Guidelines for Soft Tissue Sarcoma. There is a section for the treatment of Desmoid Sarcoma.
http://www.nccn.org/professionals/physician_gls/PDF/sarcoma.pdf
You should also consider joining a support group for Desmoid Sarcoma to keep up with latest treatment options and just for support!
ACOR: The Desmoid Tumor eCommunity
http://listserv.acor.org/archives/desmoid.html
Desmoid Tumor Foundation
http://www.dtrf.org/
Ewing's Sarcoma-Mayo Clinic
Dr. Carola Arndt explains Ewing's sarcoma, also known as a "sports tumor," in children and adolescents. Dr. Arndt also explains the evaluation and diagnosis as well as the treatment plan for patients with Ewing's sarcoma. Additionally, Dr. Arndt explains the importance of getting treatment at a facility with multidisciplinary physicians and the services offered to patients and families at Mayo Clinic.
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