Sarcoma Cancer Has anyone any experience with it?I have a family member that was just diagnosed with sarcoma and i just want to know if anyone has any experience with this type of cancer, is it especially aggressive or are there chances good? The doctor said it is especially rare and has never seen this in his 30 years of being a doctor.
Answer by Denisedds
There is no way of answering you without knowing what kind of sarcoma it is. There are dozens of different types with different outcomes.
Answer by Panda
I"m very experienced with sarcoma as my son dealt with a rare abdominal sarcoma (dsrct) for three years before passing away. There are over 50 subtypes of sarcoma and some are more aggressive than others. The overwhelming majority of adult oncologists have little to no experience treating sarcoma . . although they will try to convince you otherwise. Sarcoma patients need to be treated by a sarcoma specialist, preferably at a sarcoma center . .especially adults. Sarcoma is rare in adults . . and far more common in children, teens, and young adults . . so in some cases it makes more sense for an adult with sarcoma to locate a pediatric oncologist either for treatment or for consultation. In either case . . your family member needs a sarcoma specialist for the best chances against this monster. Many of the major cancer centers also offer a sarcoma center and oncologists who specialize in sarcoma. The Sarcoma Alliance has put together a list of these centers. You can also join the Sarcoma Alliance and ask members for recommendations about who treats this type of sarcoma:
Sarcoma Centers
http://www.sarcomaalliance.com/centers.html
Sarcoma Alliance
http://www.sarcomaalliance.com
The Importance of Treatment at a Specialty Center for Sarcomas
http://sarcomahelp.org/learning_center/articles/sarcoma_centers.html
You do not mention the subtype of sarcoma, but there are groups that can offer support and resources depending on sarcoma type. If the disease is undifferentiated than the Sarcoma Alliance may help.
The Association of Online Cancer Resources offers an active Sarcoma listserv with many patients sharing information, support, and resources . . urge your family member to join:
SARCOMA: The General Sarcoma (Cancer) Online Support Group
http://listserv.acor.org/archives/sarcoma.html
Answer by thinkingtime
What sort of sarcoma is it?
There are great websites listed by Panda above but there are also online support groups for a number of rare sarcomas.
Answer by ~Jessey~
I just finished treatment with having Ewing Sarcoma. It is very aggressive, but that doesn't mean that there isn't a good chance of them surviving. You didn't say though where the cancer is, so that's all I can really say. I'm surprised that the doctor said that he hasn't seen this at all, it's probably not the cancer I had even though mine is rare.
Orignal From: Sarcoma Cancer Has anyone any experience with it?
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